Despite being born super early, Madeleine has done a pretty awesome job of being alive. Our little warrior girl came off of her ventilator at a few days old, has been eating like a champ since day one, and has generally just been spending her days being the tiny rock star that she is. We have now learned though, that Madeleine is having some trouble with her brain.A bleed that occurred in Madeleine's brain early on resulted in a clot that is now basically clogging up the flow of cerebrospinal fluid in the ventricles of her brain and spine. Her ventricles are increasing in size as a result, and although her little baby head is capable of expanding somewhat to accommodate, she may require surgery if the ventricles continue to dilate. Since she is such a tiny little one (not yet even a kilo), this is super bad news.
On Monday, Madeleine will be having a follow-up head ultrasound to see what is happening, and whether her ventricles are getting larger. Of course, we are hoping that our sweet girl will be able to avoid surgery (or any other invasive procedures). We are trying to be as optimistic as possible, but this is her first major issue, and it feels pretty devastating. We would appreciate your thoughts and prayers for our beautiful girl.
Go babies go!!!!!!!!!! You can do it! You have an awesome Mom and Dad who are cheering you on. They have so much love to give and will be awesome to live with.
ReplyDeleteWill be keeping you close in thought and prayer. Sending you peace and strength. If you need an other set of lips, let me know :)
Love you both!
Mim
My thoughts and prayers are with all of you Alana. I am wishing all the best for Madeleine's and Reid's health and well-being. Stay strong and always hope for the best, they are getting very good care and it sounds like they are strong little troopers. Best wishes and I hope everything works out ok.
ReplyDelete[…] them late into the night huddled in my bed over my laptop screen, taking in as much as I could. When we knew that Madeleine had a bleed in her brain, I needed to read about what could come next, the subgaleal shunt and the head ultrasounds, and the […]
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